It's that time again-your weekly look into my cuckoo body. . .
So last week I told y'all we were headed back to the GI doctor to find out the official results of the MRCP. I was crossing my fingers it was something fairly routine like gallstones. Unfortunately, that doesn't seem to be the case. After more review of MRCP and the corresponding labs the doctor is concerned I may have another autoimmune condition called primary biliary cirrhosis or PBC. This is characterized by a constricted bile duct (which they saw on the MRCP) and elevated liver enzymes.
I don't really have many of the symptoms, but there is a possibility I could develop them later (jaundice, itching, extreme fatigue). Most patients with PBC don't really have symptoms until they are very sick. We won't know for sure if I have this until they complete a liver biopsy, which is scheduled for next week.
While autoimmune conditions are not hereditary, PBC may be related to PSC (primary sclerosing cholangitis) which is what my sister has. We think that's why the doctor is ordering all these tests and being careful. We are fervently praying that this is all a fluke and the doctor is being extra cautious for no reason at all!
All of this is going on in conjunction with my kidneys still doing their own thing. I have an appointment with the nephrologist this week to see if the cytotoxin is helping at all. I sure hope it is because it is wrecking havoc on my body! Some days are better than others, but I've been very nauseated and very tired recently. Love it when I can coordinate a mommy nap with a baby nap;-) I've also been very "out of it". So, if you're talking to me and I seem to zone out or can't do simple math, bear with me! Haha.
Thank you for your continued prayers-they are what's getting me through! Your support, prayers, and well-wishes have been very comforting and I reread them when I'm feeling icky, so thank you!!